Ramona Update
The neurologist basically said that part of her nervous system appears to be having a jacked-up response (not his actual description). He thinks that the meds she is currently on are the best way to deal with her pain, but admitted that the Mayo Clinic docs may know more and that he would contact them for ideas. We’ve increased her doses and it is working, as long as she isn’t out of her bed for more than a couple of hours. (Consequently, it took 4 hours to go to her doctor and back, so…pain galore.) We will continue to dope her until she is cross-eyed (we didn’t really care about LEARNING anything at school, anyway) until we hear back from him about the Mayo docs.
On another note: anybody have ideas for how to help Grey stop having nightmares every hour through the night. I miss my sanity.