December 2010
15 posts
All I Want for Christmas
Q: How does one with children manage to sleep in until 10 am on Christmas morn?
A: Keep the kids up REALLY late.
MARY CRISMIS (Nina’s spelling) to me!!! Oh, and you too!
“My favorite Christmas song is the one with ‘two turtle ducks’.”
– Nina
“Life is not about waiting for the storm to pass, it’s about learning how to...”
– Anonymous
WatchOh what a difference two years makes.
The Mini Vacation
After a rather stressful day, Rob got the harebrained idea to pack up the kids and go stay at a hotel for the night. A Wednesday night, for pete’s sake! So we did. We took the oxygen machine, IV pole and swimsuits. We stopped by Taco Time on the way then headed into the city. Rob gets a corporate rate at the Marriott, so that was an easy decision. We checked in and immediately went swimming....
Ramona Update
Good news folks, she had some really nice hours today. After sleeping until noon-ish we went for a long drive to IKEA to get meatballs and do some Christmas shopping. On the way home the pain came back, bad, but once we got her off her butt and into bed she got comfy and slept so deep it was unsettling. She was pretty mellow after her nap and is sleeping well now. She even said she wanted to go...
Ramona Update
Saturday was less bad. Sunday was all seizures, all the time. Monday has been painful, and starting tonight…withdrawal symptoms (super tight muscles and spasms) again. So, it looks like a case of damned if you do, damned if you don’t. I think I’m gonna pick sleeping all the time over pain. If this continues tomorrow we will head back to the pump doctor for an increase, again. She said on Friday,...
Ramona Update
After sleeping through two more days I took Ramona to the pump doctor again for a decrease last night. She slept terribly, which made us think we should have left her catatonic a little longer. Oh well, we’ll see what develops today.
Happy Weekend.
